Off to a Rheumatologist!
Today at my OS appointment many things happened. I will break it down by joint. Also it was decided I need to see a pediatric rheumatologist, because it is not normal for a sixteen year old to have so...
View ArticleSo Many Appointments!!
Next week I have 1 MRI, 1 injection, 2 PT appointments. YIKES!This is kind of insane. Although just as I thought progress was finally being made I could not get a pediatric rheumatologist appointment...
View ArticleMRI Number Five and Euflexxa Injection Number One
Last night I had an MRI on my right hip. This was not one of the more pleasant MRI experience I have had but hopefully I am done with MRIs for a while. The OS told me the results today since I was...
View ArticleFrankenstorm is Coming!
Last week went from bad to worse, as Tuesday night I got sick, and stayed home from school sick on Wednesday (and missed PT) but went to school sick Thursday. I called the OS's office to see if it had...
View ArticleAfter Sandy
PT on Monday got cancelled due to the storm and so did my knee injection that I was supposed to have today. Between this and cancelling PT last Wednesday because I was sick, it has been a full week...
View ArticleThe Best Present!!
Is heat and electricity and internet and all that fun stuff that people tend to have trouble living without in the 21st century. Yesterday my house got power back and there was nothing better I could...
View ArticleEuflexxa Two out of Three Done
Yesterday I had my second euflexxa injection (supposed to be third but Hurricane Sandy screwed that up...not that I am bitter or anything). My last one is next week.The appointment did not take long,...
View ArticleOne Year Later
On November 8th 2011 I woke up at six AM, even though I had the day off due to election day. I confused all the nurses in the pre-op area with a smile of excitement This was it the last leg in this...
View ArticlePlease, Don't Give Me Any More Advice!
"Have you been tested for Lyme? Did you send your test results to a lab here or in California? You know, 30% of all test come back negative and are really positive, but this lab in California is much...
View ArticleEuflexxa- 3rd Time's the Charm
I am done with euflexxa injections!!First thing I did today at HSS was go for right hip x-rays. Worst x-ray experience of my life. The x-ray tech kept trying to move my hip in ways it doesn't move, if...
View ArticleTen Thankful Things
Lately I have been a bit down, and I read somewhere writing down ten things you are thankful for at the end of the day can help. I don't think I could get ten new things everyday but figured I could...
View ArticleI am Taking Back Shoes!
A year ago I only owned one pair of sneakers, they where the shape-up sneaker (you know the ones that supposedly helped you tone your muscles). Well on day 1 of PT after knee surgery I was told they...
View ArticleA Better Pain Chart
I hate when you someone asks you to rate your pain on a scale. It is a really hard task, I go back and forth between wondering if they think I am exaggerating to being afraid that if I don't give a...
View ArticleRheumatologist Appointment Conquered!
Yesterday I spent a whopping three hours at HSS. I really liked the Rheumatologist, she was on time and spent over 45 minutes with me! I never felt she was rushing, she asked me to tell her about...
View ArticleAnother Piece of the Puzzle
Today was my eye doctor appointment. The eye doctor found inflammation in my left eye, something that is a sign of auto-immune arthritis. As the doctor put it, it is another piece in the puzzle of the...
View ArticleNew Name, New Game
You may have noticed I changed the blogs name from "House OS" to "Living Life with a Flare." It seems as if the mystery has been solved. I have all but officially been diagnosed with Juvenile...
View ArticleSafe from Denial
I think I finally have the emotional strength to write a longer post today. The past few days have been an emotional roller-coaster.Before I went to the Rheumy I had googled what to expect from the...
View ArticleLimbo:(
What real is driving my crazy right now is this limbo I am in. While I almost defiantly have RA or some form of auto-immune arthritis it has been officially diagnosed yet, and is still probably a week...
View ArticleLyme and ...?
Yesterday the Rheumatologist called my mom. My blood-work showed no markers for RA, but it did have signs of Lyme Disease. The problem is Lyme doesn't fit with most of my symptoms. So the current...
View ArticleUltrasound Guided Diagnostic Injection
Ultrasound guided injection take two! Left hip this time, and minus the cortisone this time. In case you are wondering why I decided not to get cortisone there were a few factors. In the end there was...
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